About
Created by tim on 28 Sep 2006 | Tagged as: Uncategorized
Based in Portland, Oregon, the Hepatitis C Outreach Project (HCOP) is the
nation’s oldest non-profit organization dedicated to the prevention,
awareness, education and treatment of hepatitis C and organ donation.
HCOP is committed to working with any organization or professional
individual to develop partnerships resulting in programming and good
public decision-making based on accurate information regarding hepatitis
C.
Teresa Hanbey is the founder (1992) and Executive Director.
I’m interested how you are running your program. I have Hep C, genotype 2 and I’m also the Executive Director of the National Children’s Pain Center.
You can reach me at 818 761-1062
This isn’t for individuals is it? I’m finally going to take care of my hep , and all the sudden, I can’t find anyone to talk to. My doctor “didn’t know” (it’s on EVERY history shett I fill out, it’s nothing to lie about!) So, now, she’s “freaking out. I just had major back surgey, been on MAJOR pain meds for over a year, but did quit drinking beer! However, going thru all this, I have found that I have type 2, and for the first time V-load is was over 18 million, BUT I still and always have had ( so far thank God) a healthy, “beautifully functioning liver. I’d like to try to get rid of this before it damages any part of me. Right idea? Should I call you? Where else can I go besides the specialist I’ve chosen, but can’t see til Feb 27,07. All the sudden I’m scared and still in massive pain from my back, have arthritis as well, nerve damage, possible carpel tunnel..is it worth it for me to even try. I’m in constant pain anyway, lost my job, and now my doctor is treating me differently. I don’t know how or what ‘Blogs’ are, but I thought they were sites to talk with people, and I thought this was one. So, sorry, I just needed to get this out I guess, I don’t talk to anyone about it this deeply, gee, aren’t you glad you got me??lol
Oh, I do beleive my healthy liver is due to taking “milk thistle” every day, and a product called “hep support”. Just in case someone wants to try it.
Okay, apologies, I now i’m in the wrong place. Good luck to everyone!
I\’m love this great website. Many thanks guyu
Cool website! Good work. Good resources here. Best regards!
Very interesting website. Keep up the outstanding work and thank you…
Thanks for your great site!
It is very great website from you. I am very interesting to read that site .
In my case , I got H C, and in 1997 I got biopsy in Regina Sask. My specialist doctor gave me nothing, because my liver has minimun change, even it said I got Hep C.
In 2006 I had biopsy again The blood test was : Ast.88 Alt. 119 and Gamma. 76 My blood was aliitle bit elevated in the final. The report said that I get Hep C with stage in 0,1 activity and genotype 2 infection.
I got no treatment due to my request , because I think I am old. (67 year old) . The interferon (pegasys)does not work for my age .
My doctor, after said that he does not has any trial to give me due to what I want, and sent me to a famous specialist in London,Ontario to ask his advice . This doctor gave me the blood test .But I don’t know the result of my blood test, until my appointment passed and with the order of my doctor in Kitchener, Ontario
I have an appointment on May 10 - 07 with my doctor . I think he will give me pegasys again, like the good specialist in London said that .
I ask you, what can I decide to talk to my doctor at the appointment above. Do you know any Herb or some medecine (brand name that works for H C). Please tell me .
Thanks
Art here,what I want To Know is where do I find out how to obtain this protein, Caveolin 1,that’s supposed to rejuvinate your liver. Is it available yet? I want a healthy liver again!
Thank for making this valuable information available to the public.
Check out my new site:)p
Hi, all. Nice site…I really like your site ! Good job man.
Hello
We’ve added your blog link to www.heplinks.blogspot.com and would kindly ask that you link
back.
Best regards,
Jennifer Hall-Grass
194 – Lower William St
London, Ontario
N6B 3B7
(519) 645-6652 home
(519) 860-0946 cell
To Our Canadian Government,
Let me first introduce myself my name is Jennifer (hall) Grass of London, Ontario and I am the proud daughter of Frederick M Grass and M. Darlene Grass also of London, Ontario. I am the eldest of their 5 children. The reason for this letter is that I am disgusted in the treatment of my parents and the many others over this Hep C settlement. I want a few minutes of your time so that I may voice my opinion and what I am getting to watch first hand. Please follow me I may jump around a bit but all of the contents in this letter are relevant and these are MY personal feelings.
My mother Darlene received a blood transfusion January 4th 1979. That blood was infected with the HCV (Hep C virus) She received this bad blood at St.Thomas general Hospital in St.Thomas, Ontario. I can only imagine what all of the loved ones and caregivers in these families must feel after the loss of a loved one due to the incompetence of our Government and other officials. You’ have allowed this to happen by allowing unchecked blood to enter into our Health Care facilities without the proper testing and unfortunately have in turn infected our parents, grandparents, brothers, sisters, aunts and uncles with these awful diseases, HCV and HIV. Who are you to play God?
Unfortunately I too will one day understand what it will feel like to lose a loved one to these diseases as a matter a fact I will be loosing 2 loved ones at your hands!! Is that not like murder? Just a little slower and much more painful! Me, and all of my immediate family together totaling19 not including my parents are not going to get near as much time with them as we should have or could have; had this infected blood not been given to my mom. So as a result of my mother being infected with the HCV blood my Dad became the secondary infected person.
This is not fair. Someone is responsible for taking years off of their lives and yet there is nobody to blame! So since you represent Canada then you are responsible. The onus is now on the Canadian government for making sure that they at least have some piece of mind and you give them their settlement money. Some, like my parents will have to pay for their funeral with it.
My mother is now in stage 5 and my father is in stage 4 with stage 6 being the worst (transplant or death) There quality of life is hell. In this stage of their illness they are both unable to work. My dad is lucky if he can stay awake for more than 2 hours at a time. My mom has to drag him out of the house just to get him going a little bit. And my mom well she is lucky if she goes 5 minutes pain free. We as a family go over and do as much as we can for them like cleaning, yard work and things like that. It is the hardest thing to watch! They are only 54 years young!!
From what I understand a ruling has come down from the courts that all infected persons pre 1986 or post 1990 are eligible for a portion of this settlement ruled in August of 2007.
There has been a chart or categories if you will that all infected persons shall fall into they go from 0-6 also the infected persons, My parents, were promised a, “swift transition” by our Prime Minister. Since my parents received settlements from both OCHAP and KPMG for the exact reason as above, receiving infected blood. What I think should have been done is; all persons who received the other 2 settlements should have just had a 1 page application providing their current stage with the doctors signature. That’s it! You’ could have got ALL of the other information from the papers that they had to do for the OHCAP and KPMG settlements. Due to the nature of this suit I’m sure you have access to all prior records. Now that would have been a swift transition! With that being said you would think that there should be no problem, right…WRONG!!
Now Crawford Class Action Services has all of the settlement money in trust and have sent out a 58 page application to all who are involved in this class action lawsuit. They must fill out their portion then the rest is to be filled out by their doctor taking care of the Hep C. As we all know due to this illness other illnesses have presented. In my parents case they have a wonderful hepatologist, Dr. P. Adams who is now being bombarded with hundreds of these applications. This is a fabulous doctor not to be using his valuable time to just reiterate what has already been said in 2 previous applications for OHCAP and KPMG. Don’t you people think that you are compromising QUALITY patient care? I do.
Crawford Class Action Services has now received both my mother and fathers applications. They have sent out an acknowledgement letter dated September 25/07. My parents thought ahead, knowing our Government, and they sent in ALL of the doctors reports and the trace back records from the infected blood transfusion along with their application. Isn’t a doctors report also considered a legal document? Now I know this next part will come as a shock to all but a diffency letter along with a portion of the application was sent back to them. They had to, again go to Dr. Adams and have him write a single digit in one space then initial it. Again his time is valuable this is why my parents sent along all reports. The reports as we all know have all the information needed. That’s only one diffency. Apparently now there are a few more!! Now let me ask this. Are the lawyers getting paid for each of these letters that they have sent out? Wait actually I think I can answer this one myself…of course they are!!
I could see how a lengthy application should be filled out if someone is applying for this settlement and didn’t receive the others from OHCAP or KPMG but if the applicants who have received these 2 already are having this much trouble then what are we all to think except that they are trying to soak even more out of the rightful recipients! Most of the people in the ladder stages of these diseases given to them unknowingly can’t even work a full day anymore. Some are on the verge of loosing all that they have. How many people do you think are going to just give up and take their life? If even one does that is too many!!
Now the latest thing my parents have been told is they need to provide a marriage certificate! How ridiculous are you people going to get? If they were to claim their taxes separately they could be charged with fraud. You don’t have to provide a license for that. Probably just another way for another part of the Government to make more money waste more time let the interest grow on the money and not give anymore to the recipients. I have and idea how about you give the interest on the settlement money to the families who have had to sit back and watch their parents turn into sick lings!!! My mothers drivers license, her hospital records everything her name is GRASS. My parents were married June 12, 1971 and I am positive you can verify that within the Government.
Now, what about me and all of the other me’ out there. My parents are entering the last stages of this lovely illness that somebody has bestowed upon them. And I am one of the lucky ones who gets to sit back and watch my once so playful parents dwindle away to nothingness. This is not how it’s to be when you are still so young, 54. This is shameful. You owe them your promise of a swift transition. You also owe it to their families. Since nobody has taken responsibility for this horrific mistake. Stop this nonsense and just get all of these people taken care of. That’s the very least you can do!
I spend many nights at home alone, crying and wondering ok if they should die before their money comes in how will I pay for everything? This is my reality!! This has put SO MUCH stress on everyone’s life it is unbelievable. The sad part of it all is that it is undue stress! I don’t think that you truly understand the magnitude of this situation here. This disease did not just affect the person(s) it has infected; it has affected ALL of the loved ones, caregivers that surround them.
Now ENOUGH is ENOUGH! Everything that you have asked for is there to the best of their ability. Not everyone in this world are lawyers!! You are making it almost impossible for these people to fill out these applications. So since some of these people no longer have a fighting bone in their dwindling bodies or a voice to yell the ME’ are all going to have to come together and voice their opinions and fight their fights. We can make sure that these worriers and hero’s can and will be heard.
It’s time to rattle some cages, make some noise and let the Canadian public know that these worriers are loosing all that they have worked hard for due to the Government who promised them a swift transition. Let’s get this done as quickly as possible. Alone they are just one. With all of us supporting them, they are limitless. Let’s help do this. We as their loved ones will take on this stress and get this moving. Stress, as we all know makes you more ill and if this is what it will take to relieve some of the stress my parents are going through then I WILL NOT stop. They are the only parents I have and I would move mountains for them if I had to. I have taken it upon myself to be the “wind beneath their wings” as they have been for me for many years.
Sincerely,
Jennifer (hall) Grass
Hello link
Just wanted to say helloe
Good site!
Jennifer
Well said and yes I think it is time to rattle some cages. Like your parents, my wife also received compensation from OHCAP and KPMG. Her blood tranfusion was in 1978. Since applying for the Pre 1986 Compensation package, we’ve received nothing by defiency letters from Crawford Class Action Services. First they needed documentation pertaining to the blood tranfusions. OHCAP had all that information, but for some reason, Crawford was not going to access that data. So I called OHCAP and a week later, I got the information complete with hospital records showing blood unit numbers. Crawford also needed additional proof showing my wife had undergone Interferon treatment. Fair enough, that took us a couple of days to get. The last deficiency letter stated they were now confirming the blood tranfusion records with Canadian Blood Services. WHAT???? DIDN’T THE OCHAP DOCUMENTATION GIVE THEM THAT??
It’s been 2 months and no word yet. I’ve called and email Crawford; they’ve been no help WHATSOEVER. (I feel that I’m actually corresponding with some call centre) I talked to people at CBS and they are being flooded with traceback requests. What the heck is going on here? OHCAP already had one done and they couldn’t find blood donor records for those units. So why do another one? The traceback protocol in this settlement was supposed to be a lighter verion of its predecessor because the lawyers recognized they would be dealing with older blood tranfusions. Trying to find who the donor was would, in all probability, be unsuccessful. In fact, when I spoke to CSB, they said they don’t have records going back that far. You’d think Crawford would know this, so again; Why are they trying to do another one?
In all fairness, Crawford are just the administrators and they have to be thorough so as to protect themselves. I don’t know; I just feel this has become more complicated that it needed to be. Absolutely, if an individual received OHCAP and KPMG, then that should be good enough. It would lessen the burden, the administrative costs, and allow other cases to be processed more quickly. And yes you’re right .. the Government did promise us a speedly resolution.
My wife was actually fortunate in that the interferon treatment had positive results. So we can afford to wait. However, we’re not happy with how this is being handled. I can’t imagine how angry you must feel being the stages that your parents are at (who by the way are our age) and time being so precious.. Good luck to you and them … I hope someone can put an end to this ridiculous waste of tax payers money.
Very good web site, great work and thank you for your service.
I have been just recently diagnosed with hep c. I also have hemachromatosis and porphyria cutanea tarda. My joints are aching, I am fatigued not to mention at least 15 other symptoms and having to have phlebotomies 4 weeks in a row approximately every 3 - 4 months. I received blood transfusiions in 1980. I have been accepted as a claimant from KPMG - unfortunately there are no funds available anymore. So I have joined in the Crawford class action. How on earth do I get to see a hepatologist to fill out the medical portion of the form. There is a year waiting list. Does anyone know of a hepatologist who is advocating for us victims and is willing to take the time to fill out these forms? I am willing to travel anywhere to get this done.
Help!!!
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Fascinating site and well worth the visit. I will be backa
Excelletn site. VERY informative and educational. Will ad link to my blog site.
Thanks!